Hello everybody! I am back after a week spent in Roscoff-Brittany! At tne end of the post, I will add some photos taken during the trip…
First, some news about “my c GvH” (chronical guest versus host disease). It seems that the “mouth problem” is decreasing, according to my graft doctor and also the dermatologist I met at Tenon hospital. I hope it is related with the photopheresis treatment I have done since a few months (15 times already). As for “the other part of my body”, I started the corticoid ointment a month ago, and it appears that it has real effects: yes! So, I look myself as more stupid than before: if I had spoken earlier of the problem with my graft doctor, it might have been solved already now! Stupid, stupid! And nobody to blame but myself! :-)!
Beside that, I am just fine, much better than 15 months ago! I am still tired very easily after doing regular activities, but looking backward it is really a minor problem!
I am still taking a lot of various pills everyday, including the cyclosporine stuff… I hope one day soon, my graft doctor will ask me to decrease the amount I am taking each day… dreaming, dreaming!
Recently, I have been reading papers on “manded human being, augmented man, and GMO. I am for sure “a manded human being” since my faulty hematopoietic stem cells were replaced by healthy ones from my donor (thanks to her!). But, somehow, I am “an augmented man” since the replacement of the stem cells changed me to be a more healthy “and strong” person (at least on the paper). But I can see myself as a GMO (genetically modified organism) since I have two different DNAs in my body working together! Funny is not it?
Here are some photos taken during our trip to Roscoff (Brittany). I will add more of them later…