In a few days, on Christmas eve, it will be 18 months since I received the stem cells from my donor. All the doctors, nurses, my donor, my family and my friends did such a great job that I am close to be “normal”! Well, I am still a chimera, with half of me being “a woman” DNA speaking!
Last week, I met with my graft doctor. She gave me the results regarding my blood analysis. As you can see below, it is almost “perfect”! I said to my doctor that I did not remember of having such a nice blood analysis. She answered me: but it is not yours, it is your donor’s blood analysis! Good point!
She gave me a Christmas gift in advance: she told me that it was time to reduce the amount of neoral I am taking each day, since the GvH seems to have “disappeared” in the mouth, at the level of the liver (reduction of the transminases amount), and on the sexe. I will keep having the photopheresis on a monthly basis, as it is not good to change two parameters during an experiment! Of course, I will continue the other treatments such as antibiotics and the like. I hope the experiment will be successful! And anyway, it is worst a try! If it was a success, I could dream of being “neoral” free for the two years anniversary of the graft, on june 24th 2018!
But I need to be careful: during Christmas time, we are buying small cookies coming from “Alsace”. Those cookies contain “nuts”. After just “a few” of them, I noticed some irritation in the mouth: maybe it will be better for this year to avoid those cookies! In fact, I had the same kind of result when I eated my banana bread contening nuts , or my home-made bread made from “multigrains” flour… My doctor was surprised that I could make my own bread, and asked me to bring her some home-made bread next time I will visit her at Saint Antoine… Of course I will do it!
For next year, we already have big travel plans: visiting Toronto in february, meeting our Boulder friends in Italy, visiting my good friends in China! We are free to travel!!!
And I would like to take the oportunity given to me to wish everybody a Merry Christmas and an Happy New Year. If I am ready to enjoy this new year, I know that it is because of people in Saint Antoine Hematology dept, of my anonymous donor, my family and my friends! Thank you everybody! I love you all!