My last photopheresis

Today, I went to the Saint Antoine hospital for my last photopheresis…

I started the treatment on June 2017, and had around 23 rounds of photopheresis.

It was mixed feelings. Of course, I was happy with the success of “the experiment” (GvH is gone, maybe with the help of ciclosporine), but a little sad, as I will not meet so often my nurses, who with time had become more and more my friends. This morning, when I started to talk with her, we could see tears in our eyes. I promised that whenever I will come to Saint Antoine for the regular apointments with my nice graft doctor, I will stop by to say hello.

But it is also a step forward to a full recovery, a “small step” but in the right direction!

The speedy recovery I am enjoying results from the outstanding quality of the team at Saint Antoine. (doctors, with a special thank to my graft doctor, doctors and nurses from the 4th floor, doctors and nurses from the day hospital, nurses from the photopheresis, all the other people I had the chance to meet like my “graft nurse”,…). I will never forget them. They saved my life, together with my graft donor, my wonderful family and my friends. I love you all!

However, it is not yet the end of the story! I am still on the boat, which picked me when I landed on the sea. A few months to go…

To be continued!