This week, I visited the Saint Antoine Hospital twice: on monday for the blood analysis and on tuesday to meet with my kind graft doctor.
On monday, the nurse who did the blood collection told me that if I did not pass out she would give me a piece of chocolate… and I got the chocolate ;-)! Easy way to make me quiet :-)!
On tuesday, I met my nice graft doctor. She gave me the results of the blood analysis: everything is near perfect, including the analysis related to the immune system. All the numbers are by fare much better than the ones I had in my previous life,the first life before the graft! But, as pointed out before by my doctor, it is not “me” who is charge! Then we spoke about my visit to the dermatologist at Tenon hospital and she gave me the results on the cell culture regarding one of the carcinoma I have at the back of the head: superficial, so it might be treated by dynamic phototherapy… We will see. Then we spoke about my concern regarding a coming back of the GVHc in the mouth. Although the dermatologist told me that she did not see anything, my graft doctor, who is “a specialist” in GVH, told me: it is not lichen as before but maybe… Anyway it does not need any treatment. Then, she asked how I was feeling: for me the only “problem” I have is “the fatigue”. When I have a small activity like working on stained glass for 3 hours, I feel “drained”: no energy left. Of course, I offered my kind doctor an hypothesis to explain this phenomena which is frequent in people who had a stem cells transplant: “our energy is mainly used to keep a kind of equilibrium in the fight between the foreign immune system and “me”…. Correct or not I don’t know but my graft doctor did not see that as completly foolish (maybe she is too kind to tell me that it is plain stupid!).
My next apointment with my kind graft doctor will be on june… Before I will have a small surgery to remove the carcinoma on my temple.
I am also busy being “creative”!
I am cooking:
I started recently to attend a class on sculpture /modelling:
And I started a new project on stained glass:
If I can do all those activities (as well as going to my lab and traveling around the world) it is because I had the chance to meet the fantastic team at the Saint Antoine hospital and in particular my super graft doctor, to have stem cell given by an anonymous donor, a young lady maybe from Germany. Without the support of my family and friends things would have not be so smooth…
I love you all!
A statue of Saint Antoine: Saint Ambroise church in Paris.