Gran Canaria

Gran Canaria

As you might know, at this time of the year the Paris area has usually a pretty bad weather: rain, grey skies, even snow… That is too much for old people like us! We need sun! So, we headed south to an island, spanish territory, located near the Africa cost, called Gran Canaria. It is one of the many islands in The Canarias.

During this week, we enjoyed temperatures in the twenties, sunny weather and the like! On this volcanic island, the panoramas are wonderful, and depending the positions on the island, north or south, very different lanscapes are on display: dunes, volcano rims, humid valley, beaches… Of course the vegetation is changing a lot. We saw for the first time hills covered with almonds in bloom. So beautiful! and a lot of orange trees and lemon trees.

Of course, we visited several churches to fulfil my quest of Saint Antoine statues :-)! We found 3!

20190201_131306

To finish on “a medical information”: on the first day of our trip, I noticed “a small pool of blood” under the skin on the right forearm.It was followed later in the week by a similar thing on the left hand. It was not the first time I had noticed similar blood spots on the arms and hands, but this time it was much larger. I was not really afraid as I had done a blood analysis a few weeks ago which showed that I had a large number of platelets. However, as I am curious and want to understand “everything”, I asked my kind graft doctor what it could be. She told me that it was common in people who had an hematopoietic stem cells transplant. She told me that it was related to some kind of “capillary fragility”. She has always the right words to reassure me!

With love!

 

 

 

31 months after the graft

This week, I visited the Saint Antoine Hospital twice: on monday for the blood analysis and on tuesday to meet with my kind graft doctor.

On monday, the nurse who did the blood collection told me that if I did not pass out she would give me a piece of chocolate… and I got the chocolate ;-)! Easy way to make me quiet :-)!

On tuesday, I met my nice graft doctor. She gave me the results of the blood analysis: everything is near perfect, including the analysis related to the immune system. All the numbers are by fare much better than the ones I had in my previous life,the first life before the graft! But, as pointed out before by my doctor, it is not “me” who is charge! Then we spoke about my visit to the dermatologist at Tenon hospital and she gave me the results on the cell culture regarding one of the carcinoma I have at the back of the head: superficial, so it might be treated by dynamic phototherapy… We will see. Then we spoke about my concern regarding a coming back of the GVHc in the mouth. Although the dermatologist told me that she did not see anything, my graft doctor, who is “a specialist” in GVH, told me: it is not lichen as before but maybe… Anyway it does not need any treatment. Then, she asked how I was feeling: for me the only “problem” I have is “the fatigue”. When I have a small activity like working on stained glass for 3 hours, I feel “drained”: no energy left. Of course, I offered my kind doctor an hypothesis to explain this phenomena which is frequent in people who had a stem cells transplant: “our energy is mainly used to keep a kind of equilibrium in the fight between the foreign immune system and “me”…. Correct or not I don’t know but my graft doctor did not see that as completly foolish (maybe she is too kind to tell me that it is plain stupid!).

My next apointment with my kind graft doctor will be on june… Before I will have a small surgery to remove the carcinoma on my temple.

I am also busy being “creative”!

I am cooking:

 

I started recently to attend a class on sculpture /modelling:

 

And I started a new project on stained glass:

20180617_122502

If I can do all those activities (as well as going to my lab and traveling around the world) it is because I had the chance to meet the fantastic team at the Saint Antoine hospital and in particular my super graft doctor, to have stem cell given by an anonymous donor, a young lady maybe from Germany. Without the support of my family and friends things would have not be so smooth…

I love you all!

img-20190118-wa0000

A statue of Saint Antoine: Saint Ambroise church in Paris.

 

 

The last vaccine

The last vaccine

Last monday I had the last shot of the vaccine against chicken pox. It was the last step toward “a full protection” against various diseases. I am now 31 months after the graft, and my vaccines record is more or less similar to the one for a young child! I am a young chimera in an old-looking body!

Next monday, I will go back to my favorite place in Paris, the Saint Antoine hospital! It will the time for a full blood analysis. I will prepare myself well, so that I will not faint ah ah!

Then, on tuesday, I will meet my favorite doctor, my graft doctor. It will be the first time since she told me, four months ago, that the time had come for me to stop taking ciclosporine…

Beside “the recurrent fatigue”, I am feeling OK. But it seems that there are not clear explanations regarding from where this fatigue is coming (see https://www.anthonynolan.org/sites/default/files/Managing_Fatigue_After_A_Transplant_Anthony_Nolan.pdf).

I have been thinking hard about this problem, and I came with an “explanation”: many patients after having stem cell transplant have GVH, which is the sign of “a fight” between the graft and the old tissues via the immune system. So,maybe, the old body is spending a lot of energy to controle the attacks by the new immune system. hence “the fatigue”! Not clear I know ;-)!

Today, I started a new “artistic” activity: clay modelling. The first thing I am doing is modelling an head… I will show soon the first steps…

Take care and enjoy life!

With love…

 

 

Carcinomas… again :-(!

Carcinomas… again :-(!

Last thursday, I had an appointment with the dermatologist in the Tenon hospital. It was for a followup of the previous visits I paid there during the last summer.

I had two “problems”: one on the left temple, one on the back of the head. The first carcinoma had aalready been treated by dynamic phototherapy, then with “a cream”, and at last with liquid nitrogen… But during the last visit, the dermatologist told me that I might need some surgery to remove it (I think he was “sure” but did not want to push my spirit down!). The second one, a small one, was treated with ” a cream” during the summer, but I could feel that it did not disappear.

The dermatologist took “a sample” of cells from the carcinoma at the back of the head to identify what kind of cell it is; then she will propose a treatment, phototherapy or surgery…

For “the big one”, surgery was  the way to go… So in mid-february I will pay again a visit to the Tenon hospital to have it removed, I hope for good! The dermatologist explained that a small piece of skin will be removed around the carcinoma (around 0.5cm), so it will be like a small lifting :-)! A few years ago, I had another carcinoma removed by surgery. It was right in the middle of the forehead, so during the “lifting” I had some “wrinkles” removed. I asked for  a change of the face from “me” to Robert Redford (young) but the result was very disappointing… This time I will ask to be like Georges Clooney…

george_clooney_66ème_festival_de_venise_(mostra)_2

In addition, I had some strange feelings about the mouth (and some red “plates”on another part of my body). I was afraid that maybe the GVHc was making a come back. But the dermatologist said no: breathing better, but not 100% sure… I will disccuss with my kind graft doctor during the next appointment…..

In Tenon hospital, there is a small chapel with a statue of my very good friend Saint Antoine. I wen to visit him , put a candle near him to thank him for all the good he did to me, and took a photo!

Another strange thing: in the garden, inside the hospital, we discovered a tree in bloom: january 3rd! Global warming?

Next week, I will have my last vaccine. After I will be protected, as a baby, an old baby!

At the end of January, I will meet my kind graft doctor for a regular visit, just to check if everything is OK. But on the previous day, I will have a full blood analysis…. looking for good results!

I wish everybody an Happy New Year!

With love!

20190103_134050

20190103_134253

Photos of the carcinoma taken with my smartphone (the one of the doctor did not work well)…. grey hair!

 

 

 

Cooking is like chemistry (again) :-)!

Cooking is like chemistry (again) :-)!

The Christmas/New Year time is the right period to cook cakes…

So, I spent some time making various cookies, cakes,… Here are photos of my production:

Banana bread with walnuts and carrot cake with cranberries:

Quince paste

Almond shortbread (before and after cooking):

Sourdough bread:

Lemon shortbread:

Brioche:

Cherry clafoutis:

I will try new receipes in the future…

Enjoy life!

With love!

Happy New Year 2019!

Happy New Year 2019!

Today is the 3rd New Year Eve I have the chance to share with my family and friends since the graft I had on June 24th 2016! I think it is the right time to thank the fantastic team at Saint Antoine hospital and in particular my kind graft doctor, also my anonymous donor (without her I would not be around), my family who was and is there to support me in good and not so good days, without forgetting my friends…

I would like to share with you the recent addition to my big collection of Saint Antoine’s statues: they come from various churches in France and abroad. Thank you my family and my friends! And keep sending me your new discoveries!

In the first week of the new year, I will have my first apointment at Tenon hospital in dermatology: carcinomas are still presnt, so I might need some surgery to remove them. I will take the oportunity to ask for a “lifting” :-)!

Then I will have my last vaccine…

I hope you will have all a wonderful year 2019: may all your dreams become real!

Take care and enjoy life!

With love…

 

 

 

 

Stained glass projects: being “creative”

Stained glass projects: being “creative”

Two years ago, for Christmas, as a gift, I received a ticket good for 5 stained glass courses at http://www.irisations.com/Irisations-index-vitrail-Paris-en. Although I already had a training on stained glass a few years ago, I was a beginner. Under the guidance of Tatiana, I learned again the basics…

Made in Chartres a few years ago:

 

I was just 8 months after the graft, and I was hardly strong enough to cut the glass…After standing in front of “the bench” for 3 hours, I was exhausted…  crying when being alone in the car on my way back home. Then, slowly, I came back to life :-)!

Here is my first “masterpiece”: it took me hours to finish it, although it is not so well done!

IMG-20170707-WA0000

It is now in Toronto: international recognition ah ah!

My second project came from a stained glass “window” I had noticed in a small church on an island in the golf du morbihan… I was overconfident! So many pieces… Well at the end, I made it, thanks again to Tatiana.

P1120327

 

 

 

 

For the third project, I decided to try the classical stained glass, using lead (the first two projects were  “Tiffany” style). The idea came from the web….

 

 

For the last project, completed last friday, I went back to the “Tiffany style”, taking the idea again from internet…

 

 

 

 

With time, I am becoming “addicted” to stained glass :-)! Why? Maybe because it is a kind of substitute to the experiments I did for years in organic synthesis. Making new molecules is a kind of “creativity”, as it is to make stained glass (maybe I am pushing too fare the meaning of “creativity” ;-)!)

Anyway, last friday I started a new project….

20180617_122502

Before closing this post, I would like to point out that if I can do projects like the ones I described above it is because I was lucky enough to meet the fantastic group of people at Saint Antoine hospital and in particular my kind graft doctor, of course my anonymous donor, and my wonderful family: even when fare way, you are all within me all the time!

With love…

Oh yes, yesterday I met the first tattooed Saint Antoine in the Eglise de Saint Germain des Prés in Paris:

20181216_093020

 

 

 

Building up a new immune system…

Building up a new immune system…

As you all know, after the chemotherapy used “to wash out” all the bad hematopoietic stem cells , all the old good immune system I made 60 years to build was gone…

In early 2017, then at the end of 2018, I started a campaign of vaccines against stretococcus pneumoniae, diphteria, tetanos, whooping cough, hepatitis B, poliomyelitis,  haemophilus influenzoe,pneumococcal infection, measles, mumps, rubella. Of course I had also the flue vaccine!

I am almost at the end of the campaign…

Today, December 19th 2018, I had the first shot of the last vaccine: chicken pox. In a month, I will have the second shot, and I will be fully covered as a newborn!

However, when I had my small number of whites cells, long long time ago, I was never sick: no infections, a mystery for doctors! But I had my old good immune system working! Nowdays, it is not the same story: I had twice a cold, something I don’t remember I had for years before. For the last cold, which is not finish yet, I did not do anything against it: I am trying to build my own immune system by giving it something to fight against! From a biological stand point, I might be wrong, but who cares :-)!

Since this blog is made to share my experiences, I would like also to speak about something which is disturbing me: it is the fatigue I am experiencing whenever I am doing some activities: I feel tired… It was not like that in the “old good times” ;-)! On talking of this problem with my kind graft doctor, she said that it is a situation more than half of the people who had stem cells transplants are reporting. Nobody knows from where it comes. She also told me that she has no “magic bullet” available to help. It is OK, I still like her :-)!

Here is a paper I found related to this problem:

Click to access Managing_Fatigue_After_A_Transplant_Anthony_Nolan.pdf

It is very informative, but no cure offered of course…. but I don’t feel alone :-)!

I also made a blood analysis, since it was already 2 months I did one: according to my kind graft doctor everything looks OK, although there are “signs” of a viral infection…. the cold!

Anyway, it does prevent us to travel! Last week, we went to Britanny: Saint Malo, Cancale, Dol de Bretagne. here are some photos taken around those places…

We also visited the Mucha Exhibit at the Luxembourg museum… Photos!

And please, don’t forget to enjoy life!

With love.

 

 

 

 

 

 

 

 

 

 

 

 

A new round of vaccines!

A new round of vaccines!

This fall, I will need to complete my protection by having the second round of vaccines I could not have last year because of my limited immune system.

Before leaving for China, I had  the first shot of the vaccine against measles + rubella + mumps. The second was scheduled in four weeks, but my family doctor told me that I had better have the flue shot before; so last monday I had it.

In 3 weeks, I will have the second shot for the vaccine M + R + M.

Yesterday, november 21st, I had the second shot for the M-R-M vaccin… In a month or so, I will have the first injection for the last vaccin: in two months, I will be protected in full as a new-born :-)!

During my last apointment with my kind graft doctor, she told me that I would need to have a blood analysis by the end of november (two months after the one I had in september). It is just to see if everything stays “normal”…

As I said before I don’t like too much the fall season: it is depressing…

On a brighter side, it is the 3rd fall  I am living since my second birth :-)!

I love you all!

 

 

 

 

 

20181108_083100_resized

 

 

 

A few photos taken this morning in the garden of Luxembourg, on my way to the lab at Curie….

 

 

IMG_02151

 

 

Nanjing-Hangzhou-China

Nanjing-Hangzhou-China

 

 

 

 

 

 

Greetings from Nanjing-China!

This time no health-related reports! Just fun! Enjoying my new visit to Southeast University in Nanjing.

Here are some photos taken around the campus this morning. I will add more in the coming days…

If I can travel “freely” now, it is because of the outstanding job made by my wonderful graft doctor and the team in Saint Antoine hospital. I don’t forget my stem cells donor (she is within me all the time ;-)!), and my beautiful family and friends. I love you all!

20181024_072946

On the breakfast table… The ones who visited China before will understand the meaning :-)!

20181024_071713

 

 

 

 

 

 

 

 

 

 

Air pollution in nanjing this morning (october 25th)…

20181025_080912

Primary school in Nanjing:

 

 

Smelling the chemicals when traveling along the corridor… Good memory of “the old good time”!

 

 

Today, October 26th, we are visiting Hangzhou, a place I already visited last spring. Here are a few photos I took in May and photos taken during this visit…

20180426_142359

Week-end in Hangzhou…

Xixi National Wetland Park…

 

 

 

 

Housing in Hangzhou

 

 

West lake and a pagoda:

 

 

Copper museum

20181027_111352

Light show

 

 

 

 

 

 

October 29th: back in Nanjing…

 

 

20181029_075430

 

 

Nanjing October 30th: in and around Southest University Campus

 

 

 

 

 

 

20181030_083934

 

 

Nanjing or Paris? Eiffel tower and Les Invalides ;-)!

20181030_065512

 

 

Chinese jasmine cookies…

 

 

On and around the campus this morning, November 1st 2018:

 

 

 

 

 

 

20181101_122300

November 2nd, Last chinese breakfast…

 

 

Around the campus…

 

 

 

 

November 2nd: last night in Nanjing, in an hotel near the campus…

 

November 3rd: In Beining, on the way home, waiting for the boarding…